Alpha-1 Community

We engage with Alpha-1 community representative organizations to gain first-hand understanding of the experiences of Alphas and to ensure their voices are meaningfully included in how we communicate, collaborate and develop our program. These conversations help shape our understanding of the needs of those living with Alpha-1 Antitrypsin Deficiency (AATD) and to inform our approaches to development and engagement.

You can read more about an event we hosted to mark Rare Disease Day 2024, where we were pleased to welcome Karen O’Hara, Chair of the Alpha-1 UK Support Group and Board Member of the recently formed Alpha-1 Europe Alliance, Professor David Parr, Consultant at the University Hospital in Coventry and Honorary Professor of Respiratory Medicine at the University of Warwick, and Dr. Marc Miravitlles, Senior Researcher and Consultant at Vall d’Hebron Hospital in Barcelona.