Working with patients

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We know that there is nothing for you, without you. We recognize the value in collaborating with patients and patient communities – particularly in rare diseases, where you are often the experts in your own or your family’s condition.

That’s why we actively seek out opportunities to include your voice and actively work to foster meaningful relationships with community representation groups. We also believe that it is important for all of our team members to understand and feel the impact that our work could have on the lives of patients, which is why we provide our team with opportunities to connect with patient communities.

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Mereo and the Alpha-1 community

We have previously worked with community organizations such as Alpha-1 Foundation, Alpha-1 Global, Alpha-1 UK Support Group. In 2021, alongside European AATD community groups we launched the What is Alpha-1? campaign to improve awareness of AATD.

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Mereo and the OI community

We have previously worked with community organizations such as Osteogenesis Imperfecta Federation Europe (OIFE) and Osteogenesis Imperfecta Foundation (OIF).

We have also welcomed Taco van Welzenis from the Osteogenesis Imperfecta Federation Europe (OIFE) to our offices, and Mereo employees have joined the OI community at The Brittle Bone Society Virtual Conference, The Osteogenesis Imperfecta Foundation’s Virtual National Conference, The OIFE Annual General Meeting, and the OIF National Conference.

In 2021, Mereo financially supported the development and delivery of the IMPACT Survey, a joint initiative with the Osteogenesis Imperfecta Foundation (OIF) and the Osteogenesis Imperfecta Federation Europe (OIFE). The survey, which was the largest global gathering of data to date about the impact that OI has on people with OI, their families and caregivers, will be used to support future collaborative work on better diagnosis, treatment, and care and to support the timely evaluation and availability of potential new treatments.


Thank you to Mereo for inviting us to talk about OI from the perspective of people who have OI themselves, and to provide advice from the patient organization perspective. We are thrilled that you are interested in hearing the patient’s voices and want to work with us in such a constructive way.”

Ingunn Westerheim, President of Osteogenesis Imperfecta Federation Europe (OIFE)

Patient Community Updates