The IMPACT Survey
(Living with Osteogenesis Imperfecta: understanding experiences based on community Insight & evidence)
Mereo is financially supporting the development and delivery of the IMPACT Survey, a joint initiative with the Osteogenesis Imperfecta Foundation (OIF) and the Osteogenesis Imperfecta Federation Europe (OIFE) to capture and quantify the impact of OI on people’s lives and on national healthcare systems. The survey is made financially possible by a full sponsorship from Mereo to the third-party scientific agency conducting the work. The content of the project is overseen by a Steering Committee comprising representatives from both OIF and OIFE, specialised physicians treating adults and children affected by OI, as well as representatives from Mereo. The Steering Committee will be responsible for development of the survey, analysis and reporting of the primary results. A Data Management Committee, on which Mereo has no representation, will be responsible for management of the data long-term and for securing that any requests for use of the anonymised data are in the best interests of the OI community.